If you are a researcher thinking about involving people in your research as partners rather than subjects, we can help you by providing training, guidance around recruitment and access to resources.
HSC R&D Division in partnership with Macmillan Cancer Support and the Northern Ireland Cancer Trials Centre deliver workshops on Building Research Partnerships.
The Building Research Partnerships Course is a one day course to provide you with a basic knowledge of and practical steps to implementing PPI in your own research. Ideally you will come with a service user or member of the public you have recruited as this course is aimed at you both as partners in the research process. However, if you haven’t already recruited someone this course will help you with practical steps to get started and dip your toe in the water. The links below provide more information about the course and an example programme.
The workshops use a quality assured train the trainer approach to explore the area of health and social care research as well as the various ways the public can be constructively involved in the research process as partners. They aim to strengthen mutual understanding and working relationships between researchers and the public, and support researchers in developing and delivering quality research that is accessible, acceptable and patient focused to benefit patients and Health and Social Care.
Since 2012 several workshops have taken place in Northern Ireland. Following each course, participants were invited to complete evaluation forms.
Evaluation showed that the workshops:
- have enabled capacity building at a local and national level
- have led to a positive learning environment for participants
- have helped to engage a group of professionals and public with a range of conditions and experience
- have helped build partnerships which have the potential to have a measurable impact on practice
Recruiting people to be involved with you
A Recruitment Advert can be used and adapted for your own clinical area to advertise for service users and the public who may be interested in being involved in your area. It can be posted in lifts, foyers, clinics or other public areas where potential participants might gather.
Also, the DirectoryofCommunityNetworks provides a list of organisations who may also be contacted to help you access people in the relevant area.
- Guide to peer research with young people from one of the Bamford Implementation Commissioned Research Studies "Transitions & outcomes for care leavers with mental health and/or intellectual disabilities" Dr B Kelly (QUB)
NIHR Research Design Service (RDS) patient and public involvement (PPI) Handbook
The MRC Clinical Trials Unit at UCL: guidance for researchers on patient and public involvement. and guidance and a template for writing a patient information sheet (PIS) for adult trials, which uses research evidence to ensure that the PIS is clear and easy to understand.
Chantal Camden et al. 2015: Engaging stakeholders in rehabilitation research: a scoping review of strategies used in partnerships and evaluation of impacts.
Alex Pollock et al. 2015: User involvement in a Cochrane systematic review: using structured methods to enhance the clinical relevance, usefulness and useability of a systematic review update.
Involve - Good Practice guidelines
NCRI / Involve 2010 - Guidance for Chairs
DHSSPS: Reimbursement Policy