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NI Launch of Join Dementia Research Initiative

Northern Ireland to boost participation in dementia research through ground-breaking new service

A nationwide online and telephone service that helps people to take part in dementia research studies launched in Northern Ireland on the 23rd of September 2015, during World Alzheimer’s Month. Join Dementia Research is a collaboration between the National Institute for Health Research (NIHR), Alzheimer’s Research UK, Alzheimer’s Society and Alzheimer Scotland and  is being promoted by the NICRN Dementia Research team.  Join Dementia Research promises to accelerate the pace of dementia research in Northern Ireland by allowing people with and without dementia to register their interest in studies, and helping researchers find the right participants at the right time.

The lack of access to willing volunteers is holding back critical research into the condition with government figures showing that only around 5% of people with dementia take part in research studies. Join Dementia Research will boost research participation by connecting people interested in research to suitable dementia studies across Northern Ireland and other parts of the UK, as well as streamlining the recruitment process for researchers. By signing up, volunteers agree to be contacted to take part in new studies getting underway in their area, from which point they can decide if they wish to take part.

Anyone with or without dementia over the age of 18 years can register. One unique advantage of the service is that you can sign up on behalf of someone else, providing you are acting in their best interests. Anybody registered in the service can withdraw their information from the system at any time.

You can complete a form online at www.joindementiaresearch.nihr.ac.uk or call one of the supporting charity helplines: Alzheimer Scotland (0808 808 3000), Alzheimer’s Research UK (0300 111 5 111) or Alzheimer’s Society (0300 222 1122).  Postal registration forms are also available. Please follow at @beatdementia and/or check our facebook page /joindementiaresearch. 

Contact the Dementia Research Team if any further information required on:

Tel:  028 9063 5025. Mobile: 07825314380.  E-mail: a.wallace@qub.ac.uk